The post title pretty much says it all, but if you want some more details, read on..
Oliver had biopsies with 20+ eosinophils in them (others had just a few). 20+ is high enough to diagnose, so that's not really a good thing. However, the gastroenterologist was not concerned about this, because he saw it as an improvement (an improvement over his initial endoscopy, but not over his second one, I should have called him on that, but I didn't). Jordan and I aren't satisfied with these results, and crossed fingers and toes that the allergist (whom we had an appointment with just days after we received the results) wouldn't be satisfied either.
Our allergist seems to know his stuff, but he's very much a man of few words. He looked over the results and then suggested skin prick tests. The skin tests showed a positive reaction to corn. So we pulled corn from his diet. This has proved to be a tricky one because it involves removing foods that have always been safe for him, but he's doing quite well with it. Probably because he's still very much in a "out of sight, out of mind" stage, so if we don't have it (or it is hidden out of view), he does very well when I say "we don't have any of that". I have explained to him that he can't have corn anymore, but he just started telling me that things don't have corn in them, so I've found telling him we don't have something (and tossing a few things so that can be true) works best.
Almost immediately he started sleeping better. It seemed too quick to be linked, but it's hard to know for sure. He's been sleeping very poorly for the past two months or so, and it was so nice to be able to go the entire night without him waking up and crying! After a few days, his appetite also improved. He's been consistently eating well for the past five days or so. Though his weight gain has been okay, I've still been very worried about his lack of eating (and drinking his formula) over the past very long time, so it's nice to seem him eating! Again, pretty quick changes, so it's hard to know if it's connected to the corn removal or just a fluke.
We'll follow up with his allergist in six weeks and go from there.
I am so glad that he is sleeping better! Taking corn out does eliminate al lot of food! Love you guys!!
ReplyDeleteHe is such a sweet patient boy. Glad you know what part of the problem was. Good luck!
ReplyDeleteLove and hugs to you all. Hang in there!
ReplyDeleteWe have EGE (eos in the lower GI) and I saw your blog post on FB. When we lost corn it was the hardest thing in the world to work out. Corn is in everything. Even broken down corn seems to affect my EGE kid. Sometimes we'll try something that most people have concluded is safe for eos kids, and end up being sick anyway. Its one of the hardest things to avoid, and one of my sons worst triggers. I'm so sorry you lost corn, I hope that you get better results next scope. Lots of hugs!
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